It may not sound like cause for celebration, but Alyssa Nobles is planning an epilepsy carnival.
Nobles' 4-year-old daughter Maddy was diagnosed with epilepsy a year ago, and Nobles is trying to come up with novel - and fun - ways to raise money for the Epilepsy Foundation.
She is holding the carnival at Werner Park, on Route 62 near Russell, on Saturday, June 8, from noon to 4 p.m.
Times Observer photo by Rob Andersen
Alyssa Nobles checks a poster for her Epilepsy Carnival, to be held Saturday, June 8 at Werner Park near Russell. She is raising funds for the Epilepsy Foundation of Western/Central Pennsylvania.
She said, "Oh, my goodness we're going to have fun!" Tickets for the 12 to 15 games she is planning will cost 5 cents; and there will be face painting, a Chinese auction, vendors and crafters with beauty products, jewelry and fashions for the adults. She said people can bring t-shirts for tie dying.
Russell and North Warren volunteer fire departments will be on hand with equipment, and possibly a helicopter visit by Stat Medivac from Erie, weather permitting.
Hot dogs and popcorn will also be sold, and informational handouts on epilepsy will be available. Nobles added with emphasis, "Every penny will go to the Epilepsy Foundation."
She said the drugs Maddy has been taking work to a degree for a period of time, then the benefits taper off. Her seizures last six or seven minutes, five or six times a day. The doctors want to start her on Depakote, but it can have negative effects on the liver so Maddy will go to Pittsburgh for blood testing.
Nobles said, "We try to explain things to her on her level, and she is beginning to understand that she is different from other people."
She said donations, volunteers and vendors for the carnival would be appreciated, Anyone interested can call her at 633-1768 or email her at firstname.lastname@example.org.