Pulling for Poppy
The Hessel Valley Lutheran Church in Chandler’s Valley will be hosting a benefit spaghetti and meatball dinner for local child Poppy Retterer on September 13. The dinner will take place from 4 p.m. to 6 p.m.
Poppy is the 22-month old daughter of Katie Schuyler and Tyler Retterer of Warren. Shortly after birth, Poppy was diagnosed with Semilobar Holoprosencephaly, a rare diagnosis where the two hemispheres of the brain are not completely separated. Right now, Poppy eats, drinks, and takes medicine through a feeding tube while she works on getting strong enough to swallow safely.
Young Poppy has also been diagnosed with Cornelia de Lange Syndrome and epilepsy, which can lead to seizures. These seizures are mostly taken care of by medicine, but they can cause breathing loss periodically.
Poppy is currently receiving treatment at Children’s Hospital in Pittsburgh after enduring multiple seizures in the last week. She has undergone a sleep study and was recently approved for an epilepsy monitor, which can detect seizures while she sleeps.
When she returns home, she will work with therapists to learn how to use her arms and legs to explore, walk, and play. Poppy currently uses a wheelchair and leg braces, both of which help her become stronger.
All proceeds from the benefit dinner will go towards helping Poppy’s parents with medical and travel expenses so Poppy can keep receiving the best treatment possible.
You can follow updates from Poppy and her family on her Facebook page, “Team Poppy”. You can also donate to Team Poppy by visiting their GoFundMe page at www.gofundme.com/9b-team-poppy.